Offline juliedeeinthesnow

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02/09/09
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Interesting facts about me

I am a mental health provider that works in medical settings.   I suffered with a marked case of visual snow after
a sudden onset of neurological illness, that slowly improved over a 3 year period.  It is now about 10% of it's
former severity.  I believe in my case it was associated with overexpressed immune response--allergies and possible
exposure to toxic black mold at my work site.  Improvement followed addressing severe Vitamin D deficiency (with
symptoms), allergy injections weekly for 5 years, and change of work site. I still have tinnitus, some trails and occasional
symptom flares, but the condition is very manageable.  I am interested to see if genetics plays a role in this condition. 






  

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  1. avatar

    shannon3fh

    User Infostatus offline110 Points

    02/17/08

    hey. im sorry you have tinnitus. that really sucks. i have it a little. mostly though, the thing with my ears is that when i bend over to change my son or like pick up laundry, i notice i hear a noise like if you were to put your ear next to a sea shell....like the ocean noise. if you know what im talking about lol i wrote to a dr a few hrs away from me a nuro opthamologist and he said he would be glad to see me. i am so excited for that apt. hope all is well with you.

    oh, the propranol -idk i think i might change it because i am still getting the eye and forehead pain. what do you take?
  2. avatar

    shannon3fh

    User Infostatus offline110 Points

    02/17/08

    hey there thanks for the comment. lol i did look back on theirs and i am so relieved too that its not as bad. i contacted a specialist a few hrs away from where i live and he told me i can make an apt with him. so i am happy and hopefully he can figgure some things out too. i get really bad pain above my eyes it is very hard to deal with :(
  3. avatar

    shannon3fh

    User Infostatus offline110 Points

    02/15/08

    hey. thanks for the reply. hope youre having a good day!
  4. avatar

    shannon3fh

    User Infostatus offline110 Points

    02/14/08

    hi. ya i am glad about the visual snow getting better. no luck with the after images though. can you relate to any of the pics i posted? j.w

    02/15/08

    Reply from juliedeeinthesnow:

    Hey Shannon, yeah, I can relate to the pics--when I see afterimages burned into walls it's usually simple stuff, especially like pictures frames appearing several inches below and to the side of themselves--kind of like normal afterimages after looking at something bright, but in reverse negative and it stays around too long. Yours looks more severe and complex than mine. I feel fortunate that what vs I have is pretty simple and straightforward--people sure have it worse. I'm from the foot of the mountains in North Carolina, USA. I'm a behavioral health psychologist and I have a private practice in a large medical clinic here. I like the work very much. Working while I was sick was the hardest thing I've done.